Showing posts with label bereavement. Show all posts
Showing posts with label bereavement. Show all posts
Friday, June 27, 2008
Care Packages and Katie Couric
My mom has always been great about sending me mail. When I was in college, she sent me at least one piece of mail a week. I probably never admitted to her how much that meant to me - being able to open my little mailbox in the student center and see a brightly colored greeting card or - even better! - a slip indicating that I had a package to pick up. But I'm sure she knew.
Now that I live across the pond, she has gotten back into her care package mode. Though these days the packages that the mailman crams through the slim slot in our front door contain more credit card bills and other grown-up mail than fun things. But her care packages are always thoughtful and always appreciated (I hope you're reading this, Mom!).
Yesterday, I received a big cushy envelope filled with newspaper clippings, bills (told you so), and the June 23 issue of Newsweek magazine, which contains a lot of great articles about cancer. But I will get to those later. Also included in the package was a photocopy of another Newsweek piece, written by Katie Couric back in April. The article discusses the tenth anniversary of her husband Jay Monahan's death and how Katie chose to share some of the condolence letters she received a decade ago with her daughters, who were only 2 and 6 when Jay died of colon cancer.
I am a big, big Katie Couric fan. I have met her on a couple of occasions and she has always been gracious and lovely. The first time I met her was fairly soon after my stepdad's death. I had run a race in Central Park on a beautiful weekend morning, and my mom had come to the finish line. After the race we went to a greasy-yet-swanky-spoon brunch spot, the likes of which you could only find on the Upper East Side of Manhattan. And there was Katie, eating with a friend, in her exercise clothes with no makeup. My mom and I spent our entire meal debating about whether or not to say something to her, and had decided against it until we both got up to pay our tabs at the same time.
There we were, in line behind Katie Couric to pay for our diner brunch. My heart pounded as I decided to just go for it, and said, "Excuse me, Katie?"
Most of the conversation remains a blur. I remember that my mom and I quickly told her that we had lost my stepdad recently to colon cancer, so that she didn't think we were just quack fans. She immediately took off her sunglasses to make eye contact with us as my mom told her how much she admires the grace with which Katie handled her husband's death.
"You have been a model to me," my mom said. "It hasn't been easy."
Katie replied, "Yeah, it really sucks."
But not in a Debbie Downer way. In a way that sealed my respect for Katie Couric for life. It was a moment so genuine it gives me goosebumps to write about it now, years later. In that moment, two widows of men who'd lost their lives too soon to a disease that is all too preventable instantly and deeply connected. If only for a moment.
My mom and I were also at Katie's last day on the Today Show, and appeared on camera for fleeting seconds with a group of colon cancer survivors and advocates. It was a hoot!
Anyway, this is all to say that I respect Katie a great deal, and so was excited to be able to read a piece of her writing.
I got through the article without crying, which was an achievement. Everyone who is affected by cancer has a different story to tell, and hearing a new story always makes you reflect on your own. As heartbroken as I remain about my stepdad John's death at age 64, attempting to fathom what it was like for Katie to lose her husband at age 41 - yes, forty-one - is just impossible. To lose your life partner when your daughters are too young to remember him... it's just one of those things that should never happen to anyone.
Katie's story is one of many that fuel my passion to raise awareness about this disease in the hopes of eradicating it. It is not an easy story to hear, but I deeply admire that she is putting herself out there - as a mother, a widow, and a cancer advocate.
I wonder where my mom and I will be, what we'll be up to on the tenth anniversary of John's death. This July marks the fourth anniversary, so we have a long way to go. But I'm sure the time will fly, and I can only hope that when my mom and I inevitably reach that decade milestone, that we remain as full of grace and passion as Katie Couric.
Now that I live across the pond, she has gotten back into her care package mode. Though these days the packages that the mailman crams through the slim slot in our front door contain more credit card bills and other grown-up mail than fun things. But her care packages are always thoughtful and always appreciated (I hope you're reading this, Mom!).
Yesterday, I received a big cushy envelope filled with newspaper clippings, bills (told you so), and the June 23 issue of Newsweek magazine, which contains a lot of great articles about cancer. But I will get to those later. Also included in the package was a photocopy of another Newsweek piece, written by Katie Couric back in April. The article discusses the tenth anniversary of her husband Jay Monahan's death and how Katie chose to share some of the condolence letters she received a decade ago with her daughters, who were only 2 and 6 when Jay died of colon cancer.
I am a big, big Katie Couric fan. I have met her on a couple of occasions and she has always been gracious and lovely. The first time I met her was fairly soon after my stepdad's death. I had run a race in Central Park on a beautiful weekend morning, and my mom had come to the finish line. After the race we went to a greasy-yet-swanky-spoon brunch spot, the likes of which you could only find on the Upper East Side of Manhattan. And there was Katie, eating with a friend, in her exercise clothes with no makeup. My mom and I spent our entire meal debating about whether or not to say something to her, and had decided against it until we both got up to pay our tabs at the same time.
There we were, in line behind Katie Couric to pay for our diner brunch. My heart pounded as I decided to just go for it, and said, "Excuse me, Katie?"
Most of the conversation remains a blur. I remember that my mom and I quickly told her that we had lost my stepdad recently to colon cancer, so that she didn't think we were just quack fans. She immediately took off her sunglasses to make eye contact with us as my mom told her how much she admires the grace with which Katie handled her husband's death.
"You have been a model to me," my mom said. "It hasn't been easy."
Katie replied, "Yeah, it really sucks."
But not in a Debbie Downer way. In a way that sealed my respect for Katie Couric for life. It was a moment so genuine it gives me goosebumps to write about it now, years later. In that moment, two widows of men who'd lost their lives too soon to a disease that is all too preventable instantly and deeply connected. If only for a moment.
My mom and I were also at Katie's last day on the Today Show, and appeared on camera for fleeting seconds with a group of colon cancer survivors and advocates. It was a hoot!
Anyway, this is all to say that I respect Katie a great deal, and so was excited to be able to read a piece of her writing.
I got through the article without crying, which was an achievement. Everyone who is affected by cancer has a different story to tell, and hearing a new story always makes you reflect on your own. As heartbroken as I remain about my stepdad John's death at age 64, attempting to fathom what it was like for Katie to lose her husband at age 41 - yes, forty-one - is just impossible. To lose your life partner when your daughters are too young to remember him... it's just one of those things that should never happen to anyone.
Katie's story is one of many that fuel my passion to raise awareness about this disease in the hopes of eradicating it. It is not an easy story to hear, but I deeply admire that she is putting herself out there - as a mother, a widow, and a cancer advocate.
I wonder where my mom and I will be, what we'll be up to on the tenth anniversary of John's death. This July marks the fourth anniversary, so we have a long way to go. But I'm sure the time will fly, and I can only hope that when my mom and I inevitably reach that decade milestone, that we remain as full of grace and passion as Katie Couric.
Labels:
bereavement,
cancer,
cancer advocacy,
colon cancer,
grief,
love
Thursday, June 19, 2008
Another Fabulous Website: CaringBridge
I feel like I've been posting a lot about websites lately, but there are so many great free resources out there to help people, I can't help but get excited. This whole "Web 2.0" movement, as I am coming to understand it, has the potential to do such great things and enrich people's lives. It brings out the best in good people who sit at their computers wanting to do good things for the world. Who can argue with that?
Case in point: CaringBridge. It seems as if this website has been around for about 10 years, and I sorely wish I had known about it when my stepdad was sick. The site (and the non-profit organization that runs it) provides free websites to "support and connect loved ones during critical illness, treatment and recovery." Whether the critical time stems from a cancer diagnosis, a car accident, a complicated pregnancy, or anything similarly serious, this site allows for the creation of an interactive website with features including an online journal/blog, guestbook, photo gallery, an online communities so that the families on CaringBridge can reach out to each other.
When my stepdad John was sick, I remember sending out mass email after mass email, adjusting each email depending on the group to which it was sent - my mom's family, my dad's family, my college friends, my coworkers, my mom's colleagues. I didn't mind doing it, but there were many other things I could have been doing with that precious time. It would have been amazing to be able to have a website where we could post just once to update everyone, and be able to show John the guestbook entries written in support of him.
Well, if it couldn't happen for us, I'm glad that 100,000 other families (!!!) have used this service, and I hope that this organization continues to thrive.
To donate to CaringBridge, click here.
Case in point: CaringBridge. It seems as if this website has been around for about 10 years, and I sorely wish I had known about it when my stepdad was sick. The site (and the non-profit organization that runs it) provides free websites to "support and connect loved ones during critical illness, treatment and recovery." Whether the critical time stems from a cancer diagnosis, a car accident, a complicated pregnancy, or anything similarly serious, this site allows for the creation of an interactive website with features including an online journal/blog, guestbook, photo gallery, an online communities so that the families on CaringBridge can reach out to each other.
When my stepdad John was sick, I remember sending out mass email after mass email, adjusting each email depending on the group to which it was sent - my mom's family, my dad's family, my college friends, my coworkers, my mom's colleagues. I didn't mind doing it, but there were many other things I could have been doing with that precious time. It would have been amazing to be able to have a website where we could post just once to update everyone, and be able to show John the guestbook entries written in support of him.
Well, if it couldn't happen for us, I'm glad that 100,000 other families (!!!) have used this service, and I hope that this organization continues to thrive.
To donate to CaringBridge, click here.
Labels:
bereavement,
cancer,
CaringBridge,
grief,
hope,
illness,
support,
Web 2.0,
www
Tuesday, April 22, 2008
Hungover? Nope, just "The Truth About Cancer."
I woke up this morning with that wonderful hungover feeling where you swear you'll never drink alcohol again. My eyes were puffy, my head was pounding, and my throat was sore from dehydration. Alas, I did not overindulge in pints of Guinness at our local pub last night. Nope. I watched the PBS special "The Truth About Cancer". And it wrecked me.
But in the early spring light of the morning after, even I could see that it was an incredible program. What strikes me most, now that I can think straight without reaching for the box of tissues, is the honesty and candor with which Linda Garmon, the writer and director, approached this most terrifying of topics. She didn't glamorize it and she didn't militarize it, as many people have chosen to cope with cancer in the limelight. Instead, she simply and candidly and heartwrenchingly filmed four families dealing with the disease.
One of these families was hers. Garmon's husband Larry was diagnosed with mesothelioma after being exposed to asbestos decades earlier. Linda and Larry decided to film their cancer journey, at first believing (as most of us who are faced with cancer do) that the story would have a happy ending.
My eyes first welled up with footage of Linda and Larry lounging in their bed. Witnessing the intimacy between them and the obvious joy they experienced just by being around each other (despite the fact that they were filling out medical forms), while knowing that Larry was not going to survive his cancer was just too much for me to handle. I immediately started thinking about my boyfriend, and what if we were - or are, someday - in that same horrible place... too much.
Because that's one of the crappiest things about cancer: it happens to really good people. I mean, it happens to everyone, of course - including really good, lovely, smart, happy people leading fulfilling lives and doing good things for the world. And what they get in return for putting all that good karma out into the universe is cancer? That. Sucks. I know firsthand that it sucks, because it happened to my stepdad. It's a crappy, crappy deal and the thought of having to go through it again - in the worst case, with my boyfriend - completely broke me down.
Nevertheless, I am so grateful that Linda Garmon made this film. Her work shows an enormous amount of courage in creating the most accurate picture of what it is like to go through cancer that I have ever witnessed besides my family's own experience. And now that I have been able to digest the show, the swelling in my eyelids has gone down, and I am almost fully rehydrated, I am left with a profound appreciation for the show and have almost fully recovered my usual positive, optimistic, balanced worldview.
Last night, I was taken aback by my fear. After all I have done as a cancer advocate, and after all the work I am doing now to learn about cancer, how is it that I am still so deeply and completely afraid of it? How can the mere thought of my boyfriend and I someday being faced with the disease cripple me emotionally and keep me crying into the wee hours of the morning?
There are no answers. There are no answers to those questions, and there are no answers to many of the other questions surrounding cancer. That's why people are still suffering. That's why we have no cure, and why we probably will never find one. We will never completely conquer cancer. Among the millions and zillions of cells that make up our bodies will always be a naughty few who mutate. As long as one single mutation occurs, cancer still exists.
But I am living a better life because of the existence of cancer. That is the silver lining of the disease. And just like the disease itself, that silver lining will always be there. I know that I am living a more honest, genuine, forthright, appreciative, courageous, loving, thoughtful, and inspired life because of John, because of cancer, and because of John and cancer. So, focus on that. I'm trying.
But in the early spring light of the morning after, even I could see that it was an incredible program. What strikes me most, now that I can think straight without reaching for the box of tissues, is the honesty and candor with which Linda Garmon, the writer and director, approached this most terrifying of topics. She didn't glamorize it and she didn't militarize it, as many people have chosen to cope with cancer in the limelight. Instead, she simply and candidly and heartwrenchingly filmed four families dealing with the disease.
One of these families was hers. Garmon's husband Larry was diagnosed with mesothelioma after being exposed to asbestos decades earlier. Linda and Larry decided to film their cancer journey, at first believing (as most of us who are faced with cancer do) that the story would have a happy ending.
My eyes first welled up with footage of Linda and Larry lounging in their bed. Witnessing the intimacy between them and the obvious joy they experienced just by being around each other (despite the fact that they were filling out medical forms), while knowing that Larry was not going to survive his cancer was just too much for me to handle. I immediately started thinking about my boyfriend, and what if we were - or are, someday - in that same horrible place... too much.
Because that's one of the crappiest things about cancer: it happens to really good people. I mean, it happens to everyone, of course - including really good, lovely, smart, happy people leading fulfilling lives and doing good things for the world. And what they get in return for putting all that good karma out into the universe is cancer? That. Sucks. I know firsthand that it sucks, because it happened to my stepdad. It's a crappy, crappy deal and the thought of having to go through it again - in the worst case, with my boyfriend - completely broke me down.
Nevertheless, I am so grateful that Linda Garmon made this film. Her work shows an enormous amount of courage in creating the most accurate picture of what it is like to go through cancer that I have ever witnessed besides my family's own experience. And now that I have been able to digest the show, the swelling in my eyelids has gone down, and I am almost fully rehydrated, I am left with a profound appreciation for the show and have almost fully recovered my usual positive, optimistic, balanced worldview.
Last night, I was taken aback by my fear. After all I have done as a cancer advocate, and after all the work I am doing now to learn about cancer, how is it that I am still so deeply and completely afraid of it? How can the mere thought of my boyfriend and I someday being faced with the disease cripple me emotionally and keep me crying into the wee hours of the morning?
There are no answers. There are no answers to those questions, and there are no answers to many of the other questions surrounding cancer. That's why people are still suffering. That's why we have no cure, and why we probably will never find one. We will never completely conquer cancer. Among the millions and zillions of cells that make up our bodies will always be a naughty few who mutate. As long as one single mutation occurs, cancer still exists.
But I am living a better life because of the existence of cancer. That is the silver lining of the disease. And just like the disease itself, that silver lining will always be there. I know that I am living a more honest, genuine, forthright, appreciative, courageous, loving, thoughtful, and inspired life because of John, because of cancer, and because of John and cancer. So, focus on that. I'm trying.
My Nerdy Cancer Reading List
So here is my reading list. A work in progress. I had polished off a few of these books before starting this blog, and will post on them in the order in which I read them. And if it seems like I am not the fastest reader... well, two things: a) I hope that keeping this blog motivates me to be a little more productive, and b) reading about cancer is an intense experience for me, so I intersperse these cancer books with lighter pleasure reading. So there!
Will update this list as I read and inevitably acquire more books (I am a big nerd, after all)...
Will update this list as I read and inevitably acquire more books (I am a big nerd, after all)...
| Bibliography | Date started | Date completed |
| 15 February 2008 | 19 February 2008 | |
| December 2007 | 26 February 2008 | |
| 27 February 2008 | 14 March 2008 | |
| Davis, Devra, The Secret History of the War on Cancer (Basic Books, 2007) | 10 April 2008 |
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| Weinberg, Robert A., One Renegade Cell: How Cancer Begins (Basic Books, 1998) |
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| Greaves, Mel, Cancer: The Evolutionary Legacy (Oxford University Press, 2000) |
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| Pesmen, Curtis, The Colon Cancer Survivors' Guide: Living Stronger, Longer (Tatra Press LLC, 2005) |
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| Nettleton, Sarah, The Sociology of Health and Illness (Polity Press, 2006) |
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| Ongoing - reference |
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| Ongoing - reference |
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Labels:
activism,
advocacy,
bereavement,
book,
cancer,
cancer history,
cancer science,
colon cancer,
grief
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